Some pain will, of course, be there.
You arrive at the hospital from the airport, taking MARTA straight to Northside. Your mom is already in recovery, just out of laparoscopic surgery. The tumor in her uterus is gone. She’s groggy but stable, vitals good. When she sees it’s you beside her, holding her hand, she begins to cry—not from pain, but recognition. You squeeze gently and signal the nurse, who hands you a tissue. You dab her eyes with it, careful not to touch the oxygen line resting just beneath her nose. She tries to smile, still hazy with anesthesia. Her body is uncomfortable but intact. The worst is likely over.
She doesn’t complain about the incisions. The pain she’s feeling isn’t from the stitches—it’s from the gas they pumped into her abdomen to inflate the cavity, now pressing up into her shoulders and ribs. They ask her how much it hurts from 0 to 10, and she doesn’t give a number. “Some pain will of course be there,” she says softly. “That is natural.” She says it like she’s trying to comfort the nurse, to spare them the burden of intervening. When they offer pain medication, she shakes her head. “I don’t like putting so many chemicals in the body.”
She’s always said that—long before opioids were headlines, before anyone thought to question what counts as ‘pain worth treating.’
She’s cautious because she has every reason to be.
The nurses and techs are kind. They move gently, they explain things thoroughly. They tell her she can say no to anything. That she’s in control. That she can make her own decisions. And she can. But you begin to notice that each “No” she utters has to be accompanied by something else.
You start to feel the quiet gravity of the system around her. She can say no, but not without risking friction—delayed discharge, an insurance note, or a change in tone.
This moment is not unique. And yet something inside you shifts. A subtle tilt. Like the floor beneath your understanding has sloped downward by a few degrees. That sensation has a name. Dislocation.
You’ve likely felt it before—though perhaps not so cleanly. A scene in which everything is technically optional, but the structure makes refusal feel unsafe.
The volunteer shift that isn’t really voluntary.
The landlord’s offer you’re not meant to reject.
The doctor’s plan you can question only once.
In these moments, your consent is invited, but not entirely welcome. The options are there, but the path is marked. And you are expected to follow it.
This essay isn’t just describing that feeling. It’s trying to replicate it. You’ve been led gently through this room, through this encounter. The tenderness. The care. And now you’re being asked to consider the edges of it. To feel the tension between what’s said and what’s structured. To question what’s happening when everyone in the room—nurse, tech, patient, son—is navigating the same choreography, each trying to look free while complying under pressure.
Because it’s not just patients who are coerced. It’s
the nurse managing multiple discharge timelines.
The tech entering vitals into a screen that doesn’t account for doubt.
The provider delivering “choices” that have already been preapproved by billing.
The whole room is performing autonomy within a framework that penalizes deviance. And all of them are doing it kindly.
It’s hard to tell where the care ends and the compliance begins. Whether the nurse is being patient or strategic. Whether your mom is refusing from instinct or calculation. Whether the science is helping or simply smoothing over the constraints. The room is full of warmth. And pressure.
Once you see that, you start seeing it elsewhere.
In No Unprofitable People, I wrote about quiet systems that punish those deemed too costly to accommodate.
In Actuarial Medicine & Hidden Exclusion, I examined how medical protocols often funnel people toward “yes” through structurally imposed friction.
In Refusability Is the Future of Design, I sketched how we might build systems where saying “No” isn’t treated as failure.
But this isn’t about redesign. It’s about the moment before that impulse—to fix—takes over. The moment you notice the weight built into the air around a decision.
My mom was discharged from the hospital today. Vitals excellent. The surgery went smoothly. The tumor won’t bother her again. We’ll know soon whether it spread—we’re hopeful. They believe we caught it early. And we’re relieved.
But I can’t shake what I saw in that room. The way every refusal had to be softened. The way kindness and healing and professionalism moved in perfect rhythm with a set of constraints that no one acknowledged out loud. This wasn’t my first dislocation. But it was a sharp one.
I’m writing this not to diagnose a problem or deliver a solution. I’m writing this so that when someone offers you a choice that doesn’t feel like one, you might have a harder time pretending.